Thursday, May 31, 2012

May 31, 2012

I am allowed to change her diaper.  I had no clue they would let me!!  I was so happy.  She had
tiny little diapers.  Her body was so frail, that for someone to simply change her diaper, was all the energy she had.

Micah snuggles under one of our "lovies" that we first snuggled with so she can
know our scent.

Wednesday, May 30, 2012

May 30, 2012

Micah has had several blood transfusions.  Her IV line in her belly button will not last much longer.  The syringe in the photo is her feed.  She eats my breast milk only 2 cc's at a time.  It is such a small amount that it is able to drain into her feeding tube just by normal pressure.  

Much encouragement is starting to come in from around the world as people hear about our situation, and join us in prayer for our daughter.  Two sweet little girls made these cards for me and Micah.  We felt the Lord's presence and Love through so many believers.  Time after time we would open up a letter, receive a phone call, or get a text with an encouraging word that we needed to hear at the exact moment.  God sent us warriors to battle with us...and a lot of them happened to be children.

Monday, May 28, 2012

May 28, 2012

Many wires and machines are hooked up to Micah.  She is ventilated, has IV's (to give her
platelets, blood, and medicine), a pulse OX (to measure her oxygen), a heart monitor,
and a blood pressure cuff.
Our sweet friends girls help celebrate Micah AHAVA's first week of life!  Praise the Lord!

Micah Ahava Elise!

Happy Birthday, Micah Ahava Elise Brigham!
On May 21, 2012 at 10:11 AM, our daughter Micah was born. She was 23 weeks & 5 days gestational age, 11 inches long, and weighed 1 pound & 2 ounces. She is a tiny, little miracle, and evidence of God's faithfulness to all of His promises. Please follow our updates on Bryan's blog. If you love Jesus, please join us in prayer for our precious girl as we begin the long journey to bring her home.

Sunday, May 27, 2012

May 27, 2012

Jaundice appears briefly, and the Blue Lights are on to make sure she recovers.  The nurses tell us to use "lovies" and place them on our bodies for a while and then put them in Micah's bed so she can smell our scent and have comfort.  We make special shirts for her and "wear them" before we place them with her. 

Saturday, May 26, 2012

May 26, 2012

Our first family photo

We are amazed by the Lord's strength!!!!!!!!!!!!

Friday, May 25, 2012

May 25, 2012

Micah's isolette is allowed to be opened briefly.  We are able to touch her
only for a moment.  We reassure her we are there and we love her.

My second time touching my daughter. 

Micah's skin was very fragile at first.  She was extrememly sensitive
to touch and would not tolerate it very well.

Tuesday, May 22, 2012

May 22, 2012

Micah survives the first 24 hours.  One of the initial hurdles they wondered about.  They told us the first 24 hours is critical as well as the first week.  Doctors explained the first couple of days is the "honeymoon" period.  Babies are in a "show off" mode and when things settle down they truly show what help they will need.  They expected her to need a lot...if she survived at all.  I muster up enough strength to hop in a wheel chair, trust Bryan to wheel me to the NICU, and stand up briefly to see my Micah.  She is small, frail, but I know she is strong. 

One of our closest friends came to walk with us during this time.  During the C-section, they normally do not allow any other people, even the Fathers there.  But I asked the doctors and staff to somehow allow Bryan to be there because I didn't know if Micah would live and if she only lived a small amount of time, I wanted Bryan to be the one with her when she went to heaven.  The doctor agreed.  Bryan suited up and was allowed in the room after I had been put to sleep.  I remember so much from that morning.  I remember them wheeling me down the hall wondering what will happen, but also knowing the Lord was there and having complete trust.  I remember calling out for one more hug from Bryan after they started wheeling me away, and they accommodated me and let him run down and hug me.  The room was cold, and FILLED with people...they were every where.  15 people were present that morning.  I had my team of doctors and Micah had hers.  I was so scared. 

We also had set up with the NICU that Ana would be allowed there with Micah in case Micah didn't live long after she was taken away from Bryan and I.  They allowed this and now that I look back at how tight the NICU security is, I amazed the Lord provided this blessing as well.  I asked Ana to sit there with her and sing over her.  I kept telling Ana "just sing over her, praise over her, tell her who God is and how strong He made her."  Ana did for hours that morning.  She later told me how nurses warned her to "enjoy her while you can."  They did not expect Micah to live long.  They did not expect Micah to walk away from the NICU without major problems....but OUR GOD REIGNS!!!!!  She walked away.  She is of the 1% category of preemies who walk away without any major medical interventions or problems.  When we left the NICU on October 3 2012, many many nurses and doctors repeated that they DO NOT see things happen like this...they do not see 23 weekers leave the NICU with no problems.  JEHOVAH JIREH!

Checking in on Micah

Our sweet little girl.

Monday, May 21, 2012

May 21, 2012

Micah's Birthday

In the early morning hours, after several days of being sick, the nurse came into my hospital room and told us Micah would be born that day.  My levels were dropping fast.  It wasn't the lupus causing the problems, it was HELP syndrome.  I had spent several days hospitalized in Abilene when they told me they were going to have to care flight me to Harris in Ft. Worth.  We were buying time, taking steroid shots, trying to rule out the possibility that it was the lupus, but it was not.  My body was breaking down fast and Micah was in trouble too.

This is me waking up for my C-section finding out Micah was alive and holding up her tiny little diaper.  And yes, they bruised my lip when they intubated me (they had to because I was at risk to hemorrhage because my platelets were below 30,000). 

Waking up from my C-section, Bryan shows me a photo of Micah.  I ask immediately if she was alive and
he said YES!

Micah in her incubator wrapped up to keep warm.  The breathing tube they used to help
her live was the smallest one possible, and it BARELY fit.  God was there, watching!

My first time seeing Micah.  I had to wait for the MAG drip to stop before I was allowed
down to the NICU.  I was so scared and so excited to meet my daughter.

 Micah was born weighing 1.2 lbs. She was 23 weeks 5 days gestationally. She was our miracle from day one.

Saturday, May 19, 2012

May 19, 2012

I was not allowed to eat while I was on the MAG drip.  Finally after what seemed year (to a pregnant person) I was allowed to eat!  Of course it was just clear liquids...but it was clear liquid bliss!!!  Being in the hospital was hard, but I knew that the Lord was there and I kept praying for my daughter.  I spoke LIFE into her.

God sent our sweet friends to encourage us.  They traveled all the way from New Mexico.  I truly do not believe we would have made it through without them.  She made this sign and placed it before my bed so I could dwell on the Lord's Truth.  It helped me a lot.

Friday, May 18, 2012

May 18, 2012

Because of unstable platelet counts, the doctors make the choice to care flight me to Ft. Worth.  They start the DREADED MAG drip that makes sure you do not have a stroke on the flight (because my blood pressure was unstable).  It caused a lot of pain and fever-like symptoms.  Bryan had to drive.  He watched me take off and then had to gather our stuff and drive to Ft. Worth.  The ride was SO bumpy that they were almost not able to take off (just what you want to hear).  It felt like someone was shaking a tin can the whole way...and yes, if you have to know...I sure did throw up ALL over myself. 

Sunday, May 13, 2012

May 13, 2012

Mother's Day

No one knew we were pregnant unless they saw me.  It was so hard, but I truly felt like the Lord was telling me to "walk with Me" and not worry about telling others.  Some people don't understand still.  But I do not regret our choice.  After burying 5 children before Micah, I didn't feel like I could handle telling everyone and have the pressure.  Instead, as I thought about how to address it, the Lord simply assured me everyday, and it became a beautiful Peace to wake up with my heart on His Promise, rather than needing to know constantly that it would be ok.  My world became focused on the Lord so intensely, that I believe it made a huge difference in the outcome and call on Micah's life. Sometimes what God does in your heart can be between only you and Him.  We cannot wait for others or have the pressures of others influence what God is asking of us...and it may be for our own good.  It doesn't have to be explained to others, justified or even make sense.  When the Lord asks you something, you follow.  Although my fear was present from time to time, it did not lead me or cause my heart to wander far.  God was there...He was working powerfully.

Last photo of me pregnant before Micah was born.  Bryan bought this
tree for me for Mother's Day and planted it for me!

Thursday, May 10, 2012

Our Groundskeeper

Bryan and I planted a small garden this year and we have a well mannered groundskeeper that we are delighted about!  His name is Csiga, which means "snail" in Hungarian.  I guess I figured it kind of fits his personality.  In fact, I think he likes the area so much, he invited some relatives to camp along with him.  The other day I counted 7 snails!!!!  Today Gracey and I got to check up on him.  Here are some cute photos!

Can't you just see the deep friendship developing between them!!!???

Csiga has many tasks in our garden.  He slimes his way to help till the soil.  He munches on bugs and roots (although I did have to have a little "heart to snail" today because he was chewing on my Lilies!!!), he protects the garden from any intruders by distracting them by spinning around and making them dizzy, he also has a very rare snail talent and can sword fight with his eye tentacles!!!!  He is one special snail!

"For by him all things were created: things in heaven and on earth, visible and invisible, whether thrones or powers or rulers or authorities; all things were created by him and for him." Col. 1:16